Can I get a quick diagnosis?

The diagnostic process for Endometriosis takes time and it can be challenging. While it’s natural to seek a cure for the condition, it’s important not to add undue pressure.

The following approaches ensure a thorough evaluation of your symptoms. Many clinicians collaborate with neighbouring doctors to enhance the diagnostic process – this allows for a more comprehensive assessment of your symptoms.

Remember, each step takes time, but advocating for your health is crucial. Be kind to yourself and prioritise how to manage your symptoms.

Who do I contact for a diagnosis?

Reach out to your Primary Care Physician or ‘GP‘ for an appointment. They’ll evaluate your symptoms, conduct initial assessments, and guide you toward any necessary referrals.

Make sure you’re prepared for your visit. Jot down a comprehensive list of both your physical and mental symptoms and note how these affect your daily life, work, and social activities.

Request referrals for a Gynecologist, Pain Management Specialist, Pelvic Floor Physiotherapist and Registered Dietitian to ensure a comprehensive assessment of both your diet and symptoms.

I know this process is difficult and be can emotionally draining, but try your best to stay informed and engaged throughout the process.

How do I tell my employer about my condition, what if I need to WFH?

It is best to apply for a position that allows for some flexibility, it may be easier to look for remote roles, hybrid working, or part-time positions if this is financially viable. Go through the interview process as usual, and if they offer you the role, then be completely transparent about your medical needs.

If you’re already working and haven’t informed your employer about your condition, the next step is to provide a doctor’s note. It should state the effects of Endometriosis and how this might impact your work. Your employer will need to know the basics so that you feel comfortable working without fear of absence or taking time for recovery.

Be as honest with your employer as possible. Do you need to work from home during flare-ups, do you need leniency during menstruation periods, or require reduced working hours?

The company may request a doctor’s note for proof of your condition which is standard practice. This may also come with a fee, so be prepared for this. It usually costs between £40 and £100*.

Are there specific tests used to diagnose Endometriosis?

When it comes to diagnosing endometriosis, a thorough approach may involve several tests. A pelvic exam is common, and usually involves a physical examination to identify abnormalities or tenderness. Tests such as an MRI’s are also used as a method of detecting Endometriotic lesions or cysts.

Blood tests, particularly markers like CA-125 may be taken, as it can identify elevated levels in some cases of endometriosis. Additionally, a biopsy, which involves collecting tissue samples for laboratory analysis, can confirm the presence of endometrial tissue outside the uterus.

A laparoscopy, minimally invasive surgery, may also be suggested as this allows for a visual examination of pelvic organs.

How long will I be waiting for appointments?

Waiting lists can be lengthy, so aim to secure referrals quickly. Be proactive in following up on appointments, test results, and referrals.

It’s likely that a physician will recommend an ultrasound, but it’s worth noting that these machines don’t always detect endometriosis and this can delay your diagnosis. I’d recommend to request an MRI for a potentially faster and more accurate review of your symptoms.

Moving forwards, your clinician will guide the next steps. Discussions may revolve around surgery, medication, or alternative coping methods such as physiotherapy.

When I need a smear test, is there a more pain-free way to do this?

When it comes to smear tests, GPs or physicians may not take into account the pain that’s associated with your Endometriosis, especially if you suffer from related conditions like dyspareunia, adenomyosis, cysts, or scar tissue from previous surgeries.

If you’re worried about sensitivity and pain, or a tilted womb which is quite common, then ask your GP to refer you to a gynecological specialist. They are more informed and educated to perform the smear test in a way that causes the least amount of distress to the womb.

Please note: This does not mean the smear test will be pain-free, it will mean the specialist has a better idea of how to perform the procedure with the awareness of your condition. Please discuss any tests with a licensed professional.